Hi,
I've just been refused a wheelchair budget by my WCS who sent me the message below. Am I right that they're wrong and that the new wheelchair budgets are suppose to be available now, and can be given in a one off 'direct payment' into my bank account so that I can buy a suitable and affordable wheelchair without the restrictions of the voucher scheme?
And if I am right, is there anything specific online I can send them to back me up please? I'm struggling to find anything that isn't vague enough for them to wriggle out of and their voucher offer, which I'd already turned down, isnt useful to me at this point so I really need them to shift their position on it. Thanks for any help, heres their message..
"We are in the process of implementing Personal Wheelchair Budgets in xxx, but have some way to go before we are ready to pilot this scheme and roll it out fully. We are therefore unable to provide you with a Personal Wheelchair Budget at this time.
.I notice your reference to direct payments. Direct payments are currently not routinely available as an option for managing a standalone personal wheelchair budget
NHS England and the Department of Health and Social Care are currently reviewing existing regulations to establish whether additional contributions are permissible under the Direct Payments in Healthcare Regulations. Direct payments are not something we are planning to roll out in xxxx in the near future, but we will be guided by national developments.
As per NHS England guidance, vouchers will remain available throughout the transition period and so will remain available until we have fully rolled out Personal Wheelchair Budgets.
927. Are you keeping count?Burgerman wrote:How many times do I have to repeat.
foghornleghorn wrote:
Sounds like I need to spec up something expensive then spend the budget on an army of dwarves
That would be easy to achieve. My spine is a twisted mess so all WCS cared about last year was trying to correct it with no understanding that if I am put in a fixed position I can't breathe as I move a bit all the time assisting my weak diaphragm breathing. I think she doubled the cost of the basic wheelchair with all the fancy seating options. I also couldn't move my arms enough to open a door or window but instead of thinking that was a backwards step she suggested fitting electric door openers all round the house! Living on another planetMichaelB wrote:You can still build an expensive spec using postural equipment though.
foghornleghorn wrote:That would be easy to achieve. My spine is a twisted mess so all WCS cared about last year was trying to correct it with no understanding that if I am put in a fixed position I can't breathe as I move a bit all the time assisting my weak diaphragm breathing. I think she doubled the cost of the basic wheelchair with all the fancy seating options. I also couldn't move my arms enough to open a door or window but instead of thinking that was a backwards step she suggested fitting electric door openers all round the house! Living on another planetMichaelB wrote:You can still build an expensive spec using postural equipment though.
I think they get away with being useless as they are presented as being experts and everything is 'free'.
Another problem experienced by Dylan was that he couldn’t charge his wheelchair independently because of the position of the charging point. When I spoke with various wheelchair providers their response was the same – they hadn’t had a demand for an alternative charging point because generally people who use powered wheelchairs have carers! This seemed quite ridiculous to me.
The second stage of the process was a Social Care Assessment. Dylan was already in receipt of a personal budget which he used to pay for his social care. But he wanted to use this direct payment money to pay for the additions to his wheelchair rather than pay for help. He was very clear, if he had to go to university with carers he would defer until he was in a position to do it on his own.
TO THEM, TRADE.My mother always told me it was vulgar to talk about money, however, in this instance I think it is really important to do so. Dylan’s new wheelchair in total, cost in the region of £5,000,
the wheelchair he would have been issued by the wheelchair service had a value of £3,000, which obviously leaves a deficit of £2,000.
Our request was that our Social Care partners pay £2,000 towards the new chair rather than continuing to give Dylan his direct payment to cover the ongoing cost of carers. This would result in system savings of around £13,000 over the next three years.
The request went to the joint funding panel and the new Personal Wheelchair Budget was approved immediately. Everyone could see the benefits of this personalised approach.
Dylan is now able to transfer independently, raise himself up to the same level as everyone else and put the charging plug into the chair himself. He also tested out the lights and hazards which he advised us would be an essential safety component when traveling back from the pub!
The experience of seeing the difference a Personal Wheelchair Budget can make to someone has had a huge impact on everyone involved. The clinicians within the wheelchair service have had their eyes opened to the opportunities available to them. Other members of the Multi-Disciplinary Team are excited about being given the autonomy to improve the outcomes for the people of the city of Hull.
For me, as a commissioner, Dylan’s experience really does demonstrate the opportunities personalisation can create.
But most importantly, Dylan has achieved his goal of going away to University on his own. I think mum was allowed to travel with him, check out his flat and then had to leave!
He is now doing what really matters to him – starting university with his new found independence.
Individual CCGs are obviously being allowed to interpret the rules in any way that suits them. Because patients will generally lack the knowledge to challenge them, CCGs will always be able to get away with this.
So what do u do complain to ccg?
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